Confirmed "Sleep Apnea."
Finally got the call from my "Sleep Study," Center from Oct. 10th. (Have been wondering WTH?)
"You have a bad case of Sleep Apnea." ("Pretty bad.") Ya Think?
Mitral Valve problem, (leaves you O2 starved.) A badly deviated septum, no nose flow. (mouth breather.) A-fib issues, Sleep Apnea, etc. a bad combination.
Scheduled for my follow up on Wed. 6th, in order to determine what CPAP/BPAP, and what setting is appropriate.
I am looking forward to getting this done, and getting some relief. I missed 3 days (Tues, Wed, Thurs.) Last week, due to only getting 2-3 hours sleep, each night. Exhausted.
Went to bed at 6:30pm last night. Woke up at 10:30pm. Done for the night. Got up at 4 am to go to work. Miserable.
"You have a bad case of Sleep Apnea." ("Pretty bad.") Ya Think?
Mitral Valve problem, (leaves you O2 starved.) A badly deviated septum, no nose flow. (mouth breather.) A-fib issues, Sleep Apnea, etc. a bad combination.
Scheduled for my follow up on Wed. 6th, in order to determine what CPAP/BPAP, and what setting is appropriate.
I am looking forward to getting this done, and getting some relief. I missed 3 days (Tues, Wed, Thurs.) Last week, due to only getting 2-3 hours sleep, each night. Exhausted.
Went to bed at 6:30pm last night. Woke up at 10:30pm. Done for the night. Got up at 4 am to go to work. Miserable.
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I hope you find a solution to your problem, Ken. I would be an absolute MONSTER if I got less than six hours uninterrupted sleep. 0 -
jimdeere wrote:I hope you find a solution to your problem, Ken. I would be an absolute MONSTER if I got less than six hours uninterrupted sleep.
6 hours uninterrupted sleep would be an absolute Godsend.0 -
I've had Sleep Apnea so long and I think they could pump up a tire with mine. starts 14 and goes to 18 and I sleep good 0 -
I am extremely anxious to get this issue addressed/resolved. Sleep, has been pretty much extremely elusive to me, for months now.
Debilitating.0 -
Go the Walmart and get a diver's mask and snorkel and hook an air compressor up to it. Just run the hose right into the hole on the snorkel and duct tape it real good. Make sure the compressor is on low before you turn it on. 0 -
Ricci Wright wrote:Go the Walmart and get a diver's mask and snorkel and hook an air compressor up to it. Just run the hose right into the hole on the snorkel and duct tape it real good. Make sure the compressor is on low before you turn it on.
I groaned before opening this.
Now I know why.0 -
What was your AHI? They told me mine (16) when they called to confirm I tested positive. I'm just barely out of the mild range which is why I don't use my APAP 100% of the time.
https://en.wikipedia.org/wiki/Apnea–hypopnea_index0 -
You mentioned a deviated septum. I had the same thing, they couldn't even get the camera up one side of my snout. Had a roto-rooter job done and it made the sleep machine seem really worth while. Problem is that they set the pressure at whatever pressure, but if it doesn't get thru your nose all it does is create mask leaks which are very annoying. I would seriously look into having the airways in your nose cleaned up so that you get what you need. It's hard enough getting used to the mask on your head/face w/o a friggin air leak.... Good luck Ken, if you need anything let me know... 0 -
I totally agree with Toad on this, getting the structure straightened out will help immensely. I had troubles sleeping also but after the roto-rooter job on my nose (severely deviated septum, infections, etc.) they pretty much disappeared.toad67 wrote:You mentioned a deviated septum. I had the same thing, they couldn't even get the camera up one side of my snout. Had a roto-rooter job done and it made the sleep machine seem really worth while. Problem is that they set the pressure at whatever pressure, but if it doesn't get thru your nose all it does is create mask leaks which are very annoying. I would seriously look into having the airways in your nose cleaned up so that you get what you need. It's hard enough getting used to the mask on your head/face w/o a friggin air leak.... Good luck Ken, if you need anything let me know...0 -
This sounds like a really tough experience. I hope you are on the better side of things soon.
I don?t get enough sleep, but in the typical working /parent sense of the issue. Its not that I am physically unable to sleep.
Man I feel for you.0 -
Glad you are getting a machine as I love mine. Here is info from my last nights sleep...You can download sleepyhead software and further break down the numbers and it will give you some ideals to help. I highly recommend the machine. I tested 16 ahi, because if is not above 15 the insurance will not help pay for the machine. I have had a few nights of 0 events as usually I have more awake than asleep. 
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Have you ever heard of anyone one going in for one of those studies that wasn't found to have "Sleep Apnea"?
I could have told you that and only charged you half as much.
Looks like it would be a lot easier and cheaper to just use oxygen. A little old clear plastic line under your nose instead of wearing a scuba diving mask hooked to an air compressor.0 -
jrent wrote:Glad you are getting a machine as I love mine. Here is info from my last nights sleep...You can download sleepyhead software and further break down the numbers and it will give you some ideals to help. I highly recommend the machine. I tested 16 ahi, because if is not above 15 the insurance will not help pay for the machine. I have had a few nights of 0 events as usually I have more awake than asleep.
I agree. I use the same charting system. ...been using a machine for ten years or so. I sleep well at night and can't imagine trying to sleep with out my machine.0 -
Ken give yourself some time on the machine to adjust. THe first couple months it made my chest/lungs sore from the constant pressure. My pressure starts a 7 min and max at 13. My average is between 9 and 10. I have the water mist tank machine (resmed 10) which you can set the temperature as I use to have a lot of sinus problems and since I have been using the machine I never get sinus headaches it seems. I have been using it 3 years. The machine makes almost zero noise. 0 -
wish I'd gotten mine sooner -- severe depression and enlarged heart problems developed before I got tested.
I was bad enough that instead of running the test one night then another night to adjust pressure they put me on a mask at midnight and I slept better than I had in a long time.
So did LOML -- I wasn't snoring!0 -
I am glad that they have pinned down the underlying causal issue and have a plan of treatment that should very quickly alleviate the worst of the symptoms and provide you some relief...
Any plans on surgeries to correct physical defects or improve air intake through the nose???
Portable and travel capable device???
Will it interfere with massive bong hits of that stank weed or prevent use of a marijuana vaporizer - hate to see it interfere with you getting blitzkrieged on some 40% bluntable product with jacked up THC levels...
No more snorting lines of coke either.
Will you still be able to smell your own farts or those of the dog???
Does the device have a data port or Bluetooth connection to track and analyze data on your tablet or phone???
No more huffing gold spray paint through gold toe white athletic socks now...
Must you sleep on your back in bed or be on your back in a recliner???
Seriously glad you are dealing with these issues in a positive manner and making progress.
Perhaps a step by step report on your first set up and usage - over the first month would be appreciated by some here...
Does the unit take Glock mags and can you add a bump stock???
Cleaning and care - replaceable filters???
Mike0 -
There are a few people that are not diagnosed, but not many,.....but there is a reason for that. First off you're not going to be sent for a sleep study unless you are complaining to a doctor of being so sleepy you drop off at traffic lights,....a spouse complains of horrific snoring, or observes you not breathing during the night,.....or certain illnesses/signs that indicate sleep apnea.Smitty500mag wrote:Have you ever heard of anyone one going in for one of those studies that wasn't found to have "Sleep Apnea"?
I could have told you that and only charged you half as much.
Looks like it would be a lot easier and cheaper to just use oxygen. A little old clear plastic line under your nose instead of wearing a scuba diving mask hooked to an air compressor.
As for the suggestion of oxygen, sometimes it is added for people with COPD, but oxygen alone will do nothing for someone with sleep apnea. The whole problem is their airway collapses when the throat muscles relax upon falling asleep. The air pressure basically 'splints' the airway, and holds it open. Supplemental O2 is not delivered that way.0 -
Marc1301 wrote:
There are a few people that are not diagnosed, but not many,.....but there is a reason for that. First off you're not going to be sent for a sleep study unless you are complaining to a doctor of being so sleepy you drop off at traffic lights,....a spouse complains of horrific snoring, or observes you not breathing during the night,.....or certain illnesses/signs that indicate sleep apnea.Smitty500mag wrote:Have you ever heard of anyone one going in for one of those studies that wasn't found to have "Sleep Apnea"?
I could have told you that and only charged you half as much.
Looks like it would be a lot easier and cheaper to just use oxygen. A little old clear plastic line under your nose instead of wearing a scuba diving mask hooked to an air compressor.
As for the suggestion of oxygen, sometimes it is added for people with COPD, but oxygen alone will do nothing for someone with sleep apnea. The whole problem is their airway collapses when the throat muscles relax upon falling asleep. The air pressure basically 'splints' the airway, and holds it open. Supplemental O2 is not delivered that way.
A voice of reason/experience.
Thank you.
Received the call I have been waiting for, scheduling my follow up "Sleep study," where they determine what will actually solve your problem. This coming Wed. 6th. Overnight.
Should be assigned a mask/system settings etc, at that point.
People who have never experienced what we/I am going through, have No Clue. I hope you do not, in the future.
Karma is a Beotch.0 -
The follow up is called a titration, and they will remotely jack around with the machine pressures until your airway stops collapsing while you sleep. They will also try various masks, and nasal pillows until one is found you find comfortable.
Ken, don't be shy. If they put something on you where you just know it's not gonna fly, let them know without any doubt.
If you can, ask to try a P10 nasal pillow setup. They are VERY comfortable for most people, and you just might find they will help with your deviated septum. Mine is that way as well, and this 'mask' basically pops mine open while I sleep. You almost hate to take it off in the morning. This has minimal straps, and face contact as well. If your mouth pops open constantly you'll have to go to a full face, but the pillows are worth a try for sure.
http://tinyurl.com/y67nqea3
Also be certain to have them demonstrate the difference between using EPR, and no EPR. That's a setting that is very different for each person. Some like it, some don't.
EPR (Expiratory Pressure Relief)
EPR is a feature on ResMed?s sleep therapy devices that gently lowers the pressure delivered to you when you breathe out. This makes it easier to breathe out against the air pressure.
Personally I keep mine set at 2, with Max being 3.
Hope this turns out to be easy for you, and that you find relief from your exhaustion soon.0 -
Thank you Marc, I appreciate your input. 0 -
I've been on CPAP/BIPAP for almost 12 years. Been through at least 5 different masks. The best I have had is the Respironics DreamWear mask. the supply hose connects to the top at a swivel (so no tube right in your face), and there are two tubes going to the nose piece, which allows you to sleep on either side without interfering with the air supply. I have a Respironics AirSense 10, which as said before is very quiet. Also, stock up on distilled water for the humidifier. I keep at least 2 gallons on hand. Tap or well water will make maintenance on your machine difficult and messy.
Good luck with your new adventure into actually sleeping for a change!!!! If any of us who use CPAP can help or give more advice, just let us know.0 -
Thank you very much Guy's.
I appreciate it.0 -
Ken, I hope and pray your medical team can get you fixed up and sleeping like a baby ASAP. Joel 0 -
Cannot imagine what you guys go through not getting a good nights sleep. 0 -
Woke up around 12:30 - 1am last night. (Done.) Layed awake, until time to get up at 4:20am.
I am WAY looking forward to getting this addressed.0 -
forgemonkey wrote:Will this make ya a more congenial person ???
Perhaps. :roll:
Wait.
I'm not "Congenial," now?0 -
Mine tested at 21ahi so last go around I got A Bi-Pap.
On most machines At he end of the year the Insurance will fight you over it (deductibles). make sure it gets order quickly.
If you have trouble sleeping try setting in a recliner (not all the way back). I forgot my machine on a trip and that help to get me thru.
I find that not using a pillow keeps my airway in line for easier breathing too. Defiantly help even with the B-Pap. A small pad is OK for comfort, but nothing bulky.
A few years back I got my septum straightened out, and that even too the thing that dangles in the back of the throat out too0 -
con?gen?ial
/k?n'jene?l/
adjective
adjective: congenial
(of a person) pleasant because of a personality, qualities, or interests that are similar to one's own.
"his need for some of bravo84?s congenial company"0 -
jimdeere wrote:con?gen?ial
/k?n'jene?l/
adjective
adjective: congenial
(of a person) pleasant because of a personality, qualities, or interests that are similar to one's own.
"his need for some of bravo84?s congenial company"
Feel free to Bite Me, Jim. :shock:
I say that, in a most "Congenial," manner, and with the utmost respect.0 -
So how did the second study go last night,......any insights yet? 0
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