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Some Seriously Miserable Nights -

KenK/84Bravo
Sleep issues getting progressively worse.

Have got apprx. 3 hours sleep last few nights in a row. Crashed about 8:30ish. (I get up at apprx. 4:20 am to go to work.) I woke up about 10:30 the other night, went back to sleep (after about an hour,) until around
12:30. Maybe slept a total of another hour the rest of the night.

Last night, somewhat the same. Woke up about 11:30 ish, was pretty much done at that point. Mind racing, feeling claustrophobic. Had to get up and walk around repeatedly. (Sensation/feel like I am getting smothered, not enough O2.) My Mitral Valve issue leaves my body O2 starved to begin with, coupled with my breathing issues, (badly deviated septum/multiple times broken nose) a bad combination. Got up for good at 3:50am. Miserably long night. No rest, no relaxation.

Sleep study (through my Cardiologist) scheduled for 10/10. I am WAY looking forward to getting some results and addressing the problem/issue. It is debilitating not getting enough sleep night, after night, after night. This with 10mg Melatonin, 50mg of Dyphenydramine, and apprx. 100mg of CBD gummies. I've got no problem falling asleep. It is the staying asleep that alludes me. Maddening.

I will be shocked if they do not prescribe a CPAP with an O2 boost.



Whenever I have requested Ambien from any of my Dr.'s, you'd think I had requested a prescrition for Crack. :o :shock:
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Comments

17 comments

Date Votes
  • hillbille
    after my bypass and stroke, I would wake at all hours, and sleep at all hours, if you have a comfortable recliner, you may try it for a night or two, may help with the snoring issue.....
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  • spasmcreek
    can replace a mitral valve thru an artery now....valve is rolled up and run up like a coronary catheterization and unrolled pushing the floppy valve aside and locks into place....BINGO...beats being opened up like a clam...thinking about doing this....
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  • KenK/84Bravo
    hillbille wrote:
    after my bypass and stroke, I would wake at all hours, and sleep at all hours, if you have a comfortable recliner, you may try it for a night or two, may help with the snoring issue.....



    I have never really been able to sleep sitting up, but I am desperate. May give it a try. Have been told/suggested this repeatedly. I feel with my head rolling/lagging downward, my breathing issues would be worse.

    Thanks though.


    Yes, have heard of the new procedures for Valve work. My last Valve job, (2005) was an 11 hour Surgery, with my Heart stopped for 8 hours. Was told prior to surgery, and after the fact, "One of the worst ones we have seen/encountered." Good times. ;):D

    Underwent another Echocardiogram last week. Waiting to speak to my Dr. about the results/implications.

    Esoesophogeal done about 5 months ago. Taken out with Fentanyl. Was not too keen on that aspect of the procedure. (After having read how danger close the dosage is/can be.)
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  • KenK/84Bravo
    I consider most of you Guy's my friends. I share more here, than almost to anyone at anytime.

    I am a very private person, used to doing what I have to do - day to day, on my own. Pride myself on that.

    I appreciate you Guy's as a sounding board, feedback site.

    Thank you all.
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  • pulsarnc
    If it turns out that you need the cpap you will be amazed at the difference it will make . Been using one for the past 4 years . The first nite I used it was the first good note of sleep I had had in over 40 years . Hope it works for you
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  • KenK/84Bravo
    pulsarnc wrote:
    If it turns out that you need the cpap you will be amazed at the difference it will make . Been using one for the past 4 years . The first nite I used it was the first good note of sleep I had had in over 40 years . Hope it works for you



    Thanks Brother.

    I am beyond hopeful.

    I will be shocked, if I am not prescribed one with O2 assist.
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  • grdad45
    Been on CPAP/BIPAP for over 12 years. Absolutely will not even try to sleep without it (back up power supply)! I had no idea what a good night's sleep was until I started it. I have a cousin with COPD, and he uses the BIPAP with O2. Says it's the greatest thing since prohibition was repealed.
    Good luck with your tests! :!:
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  • KenK/84Bravo
    grdad45 wrote:
    Been on CPAP/BIPAP for over 12 years. Absolutely will not even try to sleep without it (back up power supply)! I had no idea what a good night's sleep was until I started it. I have a cousin with COPD, and he uses the BIPAP with O2. Says it's the greatest thing since prohibition was repealed.
    Good luck with your tests! :!:


    Thank you Sir.

    I am hopeful that this issue can/will be resolved.

    The lack of sleep, is debilitating.

    I appreciate you Guy's. :)
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  • toad67
    It took me awhile to get used to my CPAP machine, and I still don't really care for it. Sure it probably makes me sleep better but I'm a side sleeper, and restless, so I usually get tied up in it and have to wake up to get untied. You might see about a bipap rather than a cpap machine. Sorry for your troubles Ken, you deserve to sleep good.
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  • grdad45
    toad67 wrote:
    It took me awhile to get used to my CPAP machine, and I still don't really care for it. Sure it probably makes me sleep better but I'm a side sleeper, and restless, so I usually get tied up in it and have to wake up to get untied. You might see about a bipap rather than a cpap machine. Sorry for your troubles Ken, you deserve to sleep good.
    Toad, see if you can get a DREAMWEAR mask. The hose feeds into the top, and swivels,I can sleep on my belly if I want to.
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  • toad67
    grdad45 wrote:
    toad67 wrote:
    It took me awhile to get used to my CPAP machine, and I still don't really care for it. Sure it probably makes me sleep better but I'm a side sleeper, and restless, so I usually get tied up in it and have to wake up to get untied. You might see about a bipap rather than a cpap machine. Sorry for your troubles Ken, you deserve to sleep good.
    Toad, see if you can get a DREAMWEAR mask. The hose feeds into the top, and swivels,I can sleep on my belly if I want to.


    Tried one of those and didn't like it. Can't do a mask, only the nasal pillows work for me..
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  • montanajoe
    • Community moderator
    Best wishes for you. Get those results and get on a program for sure.

    Wife was just diagnosed with AFIB. Did the at home sleep study. Quits breathing 27 times an hour. Going on a CPAP. Sleep apnea blamed for her AFIB. They also put her on Eliquis.
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  • KenK/84Bravo
    On reviewing my Sleep Study "Diary," (7 days now.) I am struck with how pathetic, and how little sleep I get each night. How many times I awake, how long it takes me to fall back asleep, etc.

    On average, about 3-4 hours sleep per night.

    I am SO looking forward to getting this study done, and addressing this issue, in a positive manner.
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  • ChrisStreett
    ...hope ya find some relief Ken. After a series of broken noses (Got smart, gave up the tournaments.) coupled with a natural born issue or two, I had the sleep apnea thing going so bad the doc told me that despite running a min. of 5 miles a day and my other workout regimen, I was gonna check out before I was 50. At that time option one was the diabolical nose/throat surgery which, in the end, worked for very few...but I was one of the fortunate ones. All better when I healed up. Get yourself checked out. That apnea crap is tough on the ticker.
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  • Smitty500mag
    montanajoe wrote:

    ...Sleep apnea blamed for her AFIB. They also put her on Eliquis.

    Same here. My heart was raising cane flip flopping and I wasn't sleeping a wink many nights. I was already taking Eliquis for another problem so my cardiologist wrote me a prescription for Bisoprolol Fumarate (beta blocker) and Ambien for sleep.

    After about 6 months my doctor told me to quit taking the Bisoprolol Fumarate to see if I could do without it since the AFIB had stopped plus the Bisoprolo Fumarate was causing my blood pressure and heart rate both to be to low.

    I quit taking it and everything seems to be back to normal and I sleep at least 7 hours a night now. I also don't need to take the Ambien every night as before.
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  • ltcdoty
    toad67 wrote:
    grdad45 wrote:
    toad67 wrote:
    It took me awhile to get used to my CPAP machine, and I still don't really care for it. Sure it probably makes me sleep better but I'm a side sleeper, and restless, so I usually get tied up in it and have to wake up to get untied. You might see about a bipap rather than a cpap machine. Sorry for your troubles Ken, you deserve to sleep good.
    Toad, see if you can get a DREAMWEAR mask. The hose feeds into the top, and swivels,I can sleep on my belly if I want to.


    Tried one of those and didn't like it. Can't do a mask, only the nasal pillows work for me..

    i use a Dreamwear mask with the top feed, and nasal pillows. You can sleep on your back, side or belly..

    https://www.usa.philips.com/healthcare/product/HCNOCTN452/dreamwear-mask-with-multiple-cushion-options
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  • mogley98
    Can't imagine how difficult that is, prayers go out to you for some relief
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